About us

Charity activities are taken place around the world.
About plasma of hope

Our Aim Is To Make The Lives Of People Living With Sickle Cell Disease Easier

Plasma of Hope is a UK-registered charity dedicated to supporting individuals living with Sickle Cell Disease (SCD), Thalassaemia and related illnesses. We understand the daily struggles faced by people with these conditions, from the frustration of not being able to do everyday chores to the mental toll of repeated hospital admissions. Our mission is to alleviate some of those struggles and improve quality of life.

We were founded during the heart of the Covid-19 pandemic, a time that highlighted just how vulnerable many people in the Sickle Cell community were. Since then, we have grown steadily, building projects that are shaped by those with first-hand experience of the condition.

We are proud to be a user-led organisation, with our board of trustees and leadership team made up of people who live with Sickle Cell or care for loved ones who do. This ensures our work is always guided by real understanding, empathy, and the voices of the communities we serve.

We deliver projects ranging from befriending and well-being exercise sessions to blood donor registration campaigns in partnership with NHS Blood and Transplant. We also run awareness programmes in schools, colleges and universities, family support workshops, creative arts projects, and initiatives tackling fuel poverty.

Our services began in Walsall and the Black Country (Wolverhampton, Dudley, and Sandwell) and have now expanded to Coventry and Nuneaton, reflecting both the growing need and our commitment to reaching more families.
By staying true to our lived experience roots and putting our community at the centre of all decisions, we are building a supportive environment where those affected by Sickle Cell and related conditions can live with dignity, resilience and hope.
Our Mission & Impact

Empowering the Sickle Cell Community to Thrive

Supporting Our Community

For over five years, Plasma of Hope has provided a vital lifeline in Walsall, offering essential support for those living with Sickle Cell and Thalassemia.

Empowering Better Lives

We bridge the gap between medical treatment and community care, ensuring everyone with a chronic blood disorder has the support to thrive.

At our heart, we are a Walsall-based charity led by the community, for the community,
ensuring that no one faces the challenges of Sickle Cell Disease and Thalassaemia alone.

We provide more than just information; we offer a compassionate and dedicated support
network. From emotional wellbeing and advocacy to practical guidance and everyday
resources, we help bridge the gap between medical care and daily living. By fostering a safe
and inclusive space built on shared experiences, we empower individuals and families across
Walsall to navigate the realities of Sickle Cell Disease and Thalassaemia with dignity,
resilience, and hope.

Empowering our community in Walsall

Supporting those living with Sickle Cell and Thalassaemia

Engagement
100
Families Empowered
10
Community Volunteers
10
Annual Awareness Events
10
The Hearts Behind the Mission

Guided by Visionary Leadership

Our Board of Trustees brings together experienced professionals, advocates, and community leaders who are passionate about improving the lives of individuals affected by Sickle Cell Disease and Thalassaemia. Through strong leadership, compassion, and integrity, they help guide Plasma of Hope’s mission, ensuring our work continues to create meaningful impact, empower communities, and inspire lasting change.
Dr. Daramola Olusola

Dr. Daramola Olusola

Chair of Trustees, Plasma of Hope
Dr. Olusola Daramola was appointed as Chair of Trustees of Plasma of Hope on April 2021. She provides strategic leadership and governance oversight, supporting the organisation’s mission to improve the lives of individuals and families affected by Sickle Cell Disease and Thalassaemia. Dr. Daramola is a Consultant Histo/Cytopathologist at Royal Devon University Healthcare NHS Foundation Trust, with extensive expertise in diagnostic pathology and patient-centred healthcare. Alongside her professional experience, she also lives with Sickle Cell Disease, giving her both clinical and lived experience perspectives that strengthen her advocacy and leadership within the charity. Her personal journey has deepened her passion for improving awareness, reducing stigma, and advocating for better support and healthcare outcomes for individuals living with genetic blood disorders. Through her role as Chair, she is committed to ensuring that the voices and experiences of people affected by Sickle Cell Disease remain central to the organisation’s work. Dr. Daramola plays a key role in guiding the strategic direction of Plasma of Hope, strengthening governance, supporting partnerships, and helping to deliver impactful community programmes focused on education, wellbeing, advocacy, and empowerment. Her leadership continues to inspire the organisation’s commitment to compassion, inclusion, and community impact.
Marie-Claire Kofi

Marie-Claire Kofi

Founder, Plasma of Hope
Marie-Claire Kofi is the Founder of Plasma of Hope, established in August 2020 with a vision to improve awareness, advocacy, support, and wellbeing for individuals and families affected by Sickle Cell Disease and Thalassaemia. Marie-Claire is a Radiographer with experience within healthcare settings, bringing valuable clinical knowledge and patient-centred insight to the organisation’s work. She also lives with Sickle Cell Disease, giving her both professional and lived experience perspectives that continue to shape the charity’s mission and impact within the community. Her personal journey inspired her passion for advocacy and community support, particularly in addressing the stigma, inequalities, and lack of awareness often experienced by individuals living with genetic blood disorders. Through Plasma of Hope, she has worked to create safe and empowering spaces where individuals and families can access support, education, and wellbeing initiatives. As Founder, Marie-Claire has led the development of a wide range of community programmes, awareness campaigns, mental wellbeing initiatives, and engagement activities focused on improving outcomes and strengthening support systems for affected communities. Her leadership continues to drive the organisation’s commitment to compassion, inclusion, empowerment, and community impact across the United Kingdom.
Joyce Ngassa

Joyce Ngassa

Trustee, Plasma of Hope
Joyce Ngassa was appointed as a Trustee of Plasma of Hope on January 2020. She brings valuable healthcare knowledge, compassion, and community-focused experience to the organisation’s leadership and governance. Joyce is a Registered Adult Nurse working within Birmingham and Black Country NHS Foundation Trust. Through her professional role, she has developed extensive experience in patient care, wellbeing support, and working with individuals from diverse backgrounds and communities. As a Trustee, Joyce supports the charity’s commitment to improving awareness, advocacy, and support for individuals and families affected by Sickle Cell Disease and Thalassaemia. Her healthcare background enables her to contribute important clinical insight and a strong understanding of the challenges faced by individuals living with long-term health conditions. She is passionate about promoting compassionate care, reducing health inequalities, and supporting initiatives that improve community wellbeing, education, and access to support services. Joyce continues to play an important role in helping Plasma of Hope deliver meaningful and community- driven impact.
Albertine Kamba

Albertine Kamba

Trustee, Plasma of Hope
Albertine Kamba was appointed as a Trustee of Plasma of Hope on August 2025. As someone living with Sickle Cell Disease, she brings important lived experience, compassion, and a strong commitment to advocacy and community support. Through her personal experiences, Albertine understands the daily challenges faced by individuals living with genetic blood disorders, including the physical, emotional, and social impact of Sickle Cell Disease. Her perspective helps ensure that the organisation’s work remains patient-focused, inclusive, and responsive to community needs. As a Trustee, Albertine supports the charity’s efforts to raise awareness, reduce stigma, and improve understanding of Sickle Cell Disease within communities and wider society. She is passionate about empowering individuals affected by the condition and promoting wellbeing, education, and access to support services. Her involvement within Plasma of Hope reflects the organisation’s commitment to valuing lived experience and strengthening the voices of those directly affected by Sickle Cell Disease.
Seanastef Success Kwah

Seanastef Success Kwah

Trustee, Plasma of Hope
Seanastef Success Kwah was appointed as a Trustee of Plasma of Hope on February 2025. As an individual living with Sickle Cell Disease, she brings valuable lived experience, insight, and passion to the organisation’s work and mission. Through her personal journey as a patient, Seanastef understands many of the physical, emotional, and social challenges experienced by individuals and families affected by Sickle Cell Disease. Her experiences strengthen the organisation’s commitment to ensuring that the voices of people living with the condition remain at the centre of advocacy, awareness, and support initiatives. As a Trustee, she contributes to community engagement, awareness raising, and the development of initiatives that promote wellbeing, inclusion, and empowerment for individuals affected by genetic blood disorders. She is passionate about helping to reduce stigma, improve understanding of Sickle Cell Disease, and encourage supportive and compassionate communities. Seanastef’s involvement within Plasma of Hope reflects the organisation’s dedication to patient representation, lived experience leadership, and community-driven impact.
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At Plasma of Hope, we don't just lead—we listen. Discover the impact of a board that understands the journey because they have walked it themselves.